Terms of Use

Access to and use of this website, www.ccald.com, for the “PEDALS” Clinical Trial in Childhood Cerebral Adrenoleukodystrophy and the “SADDLE” Study Assessment of Disease Progression of X-Linked ALD in Male Children (the “Site”), which is owned and operated by NeuroVia, Inc. (“NeuroVia”, “we”, “us” or “our”), is subject to the terms and conditions below (“Terms of Use”). By accessing and browsing the Site, you accept, without limitation or qualification, these Terms of Use; if you do not wish to accept them, do not access or browse the Site.

© 2017 NeuroVia, Inc. All rights reserved.

Site Content

All material on this Site including, without limitation, pictures, graphics, designs, icons, text, audio and/or video clips, computer code and software (collectively, the “Site Content”), and all intellectual property rights therein, are owned, controlled, and/or licensed by NeuroVia or other individuals or organizations and are protected by worldwide copyright laws. Nothing contained herein shall be construed as conferring any license or right under any NeuroVia or other copyright. You may access, use, display, download and print the Site Content for your personal use for non-commercial purposes, without modification or further reproduction. You may not otherwise copy, download, republish, distribute, retransmit or display any of the Site Content, or create derivative works of it, without the express written permission of NeuroVia or the copyright owner. All other rights are reserved.

Names, trademarks, service marks, trade names, trade dress and logos appearing on the Site belong exclusively to NeuroVia and/or their respective owners; are protected under applicable laws in the United States and internationally; and may not be used except with the express written permission of NeuroVia or the applicable such owner. Nothing contained herein or on the Site shall be construed as conferring any license or right under any patent or trademark.

The content and material NeuroVia provides through the Site is provided for informational purposes only and is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay seeking it because of something you have read on this Site. IF YOU THINK YOU MAY HAVE A MEDICAL EMERGENCY, CALL YOUR DOCTOR OR 911 IMMEDIATELY. Reliance on any information provided by on the Site is solely at your own risk.

Obligations of Site Visitors and Users

You agree not to do any of the following while visiting or using the Site:

  • Impersonate or misrepresent your affiliation with any person or entity;
  • Violate any applicable law or regulation, including without limitation any local, state, provincial, national or international law, any export control laws, or any regulations promulgated by any state or federal authority;
  • Access or use password protected, secure or non-public areas of the Site without authorization; or
  • Frame, repackage, or otherwise re-distribute any portion of the Site.

NeuroVia may, at its sole discretion, take any action NeuroVia deems necessary, including, but not limited to, termination of access to the Site, if NeuroVia believes a user’s conduct fails to conform to these terms and conditions or may create liability for NeuroVia or others. NeuroVia will not be liable to you or any third party as a result of such termination and modification. The terms and conditions provided in the Terms of Use will survive any such termination and modification.

Information Collection and Use

Our primary goals in collecting information are to provide and improve the Site and to enable visitors to easily navigate and use the Site.

Personally Identifiable Information. While we do collect Log Data about the Site users, we do not use this information to trace back to a specific person.

Log Data. When you visit the Site, our servers automatically record information that your browser sends whenever you visit a website (“Log Data”). The Log Data may include information such as your computer’s IP address, browser type or the webpage you were visiting before you came to the Site, pages of the Site that you visit, the time spent on those pages, information you search for on the Site, access times and dates, and other statistics. We use this information to monitor and analyze use of the Site and for the Site’s technical administration, to increase the Site’s functionality and user-friendliness, and to better tailor it to our visitors’ needs.

Uploaded or Submitted Information. We do not accept, and the Site does not allow, uploading or other submission of information or content through the Site.

Links to Other Websites

NeuroVia may provide links on our Site to other websites that are not maintained by or under the control of NeuroVia, solely as a convenience to you. If you use these links, you will leave our Site. Please remember that linked sites are not necessarily NeuroVia sites and the information on them could change without NeuroVia’s knowledge. Third party linked sites and their contents should not be attributed to NeuroVia in any manner. NeuroVia has not attempted to verify the truth or accuracy of any third party sites or their content and does not make any representations or warranties about them. If you decide to access any of the third party sites linked to this Site, you do so entirely at your own risk. In the event NeuroVia endorses a particular organization, we will clearly state our endorsement next to any link to that organization.

Disclaimer of Warranties

THIS SITE, INCLUDING ANY INFORMATION OR MATERIAL MADE AVAILABLE ON OR THROUGH THIS SITE, IS PROVIDED ON AN “AS IS” AND “AS AVAILABLE” BASIS. TO THE MAXIMUM EXTENT PERMITTED BY APPLICABLE LAW, NEUROVIA EXPRESSLY DISCLAIMS ALL WARRANTIES OF ANY KIND, EXPRESS OR IMPLIED, INCLUDING WITHOUT LIMITATION ANY WARRANTY OF SATISFACTORY QUALITY, FITNESS FOR A PARTICULAR PURPOSE OR NON-INFRINGEMENT OF ANY THIRD PARTY INTELLECTUAL PROPERTY OR PROPRIETARY RIGHTS.

FURTHERMORE, NEUROVIA DOES NOT WARRANT, TO THE FULLEST EXTENT OF APPLICABLE LAW, THE ACCURACY OR COMPLETENESS OF ANY INFORMATION ON THIS SITE AND MAY MAKE CHANGES TO THE INFORMATION ON THIS SITE AT ANY TIME WITHOUT PRIOR NOTICE TO USERS OF THIS SITE. INFORMATION AT THIS SITE, EVEN IF PERIODICALLY UPDATED, MAY NOT BE CURRENT AT THE MOMENT YOU VISIT THIS SITE AND MAY CONTAIN ERRORS.

NEUROVIA MAKES NO WARRANTY THAT THE SITE WILL MEET YOUR REQUIREMENTS; THAT THE SITE WILL BE UNINTERRUPTED, TIMELY, SECURE, OR ERROR FREE; THAT DEFECTS WILL BE CORRECTED; OR THAT THIS SITE IS FREE OF VIRUSES OR OTHER HARMFUL COMPONENTS.

Limitation of Liability

IN NO EVENT WILL NEUROVIA BE LIABLE FOR ANY DAMAGES WHATSOEVER, INCLUDING BUT NOT LIMITED TO DIRECT, INDIRECT, INCIDENTAL, PUNITIVE, AND CONSEQUENTIAL DAMAGES, ARISING OUT OF THE USE, INABILITY TO USE, OR THE RESULT OF USE OF THIS SITE, ANY WEBSITES LINKED TO THIS SITE (INCLUDING DAMAGES WHICH MAY RESULT FROM VIRUSES OR COMPUTER PROBLEMS ASSOCIATED WITH SUCH LINKED WEBSITES OR REPAIR AND REPLACEMENT OF COMPUTERS OR SERVER INFORMATION, AND FOR ANY TIME LOST AS THE RESULT OF SUCH DAMAGES), THE MATERIALS OR INFORMATION CONTAINED AT ANY OR ALL SUCH LINKED WEBSITES, OR THE MATERIALS, PRODUCTS OR SERVICES OFFERED ON THIS SITE OR ANY SUCH LINKED WEBSITES, WHETHER BASED ON WARRANTY, CONTACT, TORT OR ANY OTHER LEGAL THEORY AND WHETHER OR NOT ADVISED ON THE POSSIBILITY OF SUCH DAMAGES. IN NO EVENT WILL NEUROVIA, ITS SUPPLIERS, OR ANY OTHER PARTY INVOLVED IN CREATING, PRODUCING, OR DELIVERING THIS SITE BE LIABLE TO YOU IN ANY MANNER WHATSOEVER FOR ANY DESIGN MADE OR ACTION OR NON-ACTION TAKEN BY YOU IN RELIANCE UPON INFORMATION PROVIDED THROUGH THIS SITE, OR FOR YOUR USE OF LINKS PROVIDED BY THE SITE TO OTHER WEBSITES. APPLICABLE LAW MAY NOT ALLOW THE EXCLUSION OR LIMITATION OF INCIDENTAL OR CONSEQUENTIAL DAMAGES SO THE ABOVE LIMITATION OR EXCLUSION MAY NOT APPLY TO YOU.

Governing Law and Jurisdiction

If you are a consumer, please note that these Terms of Use, its subject matter and its formation and any disputes arising out of these Terms of Use or use of this Site are governed by the laws of California and the courts of California will have non-exclusive jurisdiction. However you may have additional statutory rights under the applicable laws of the country in which you reside. Nothing in these terms seeks to limit those rights to the extent prohibited by law.

If you are a business, these Terms of Use and any disputes arising out of these Terms of Use or any use of this Site (and any non-contractual disputes or claims) are governed by the laws of California and the courts of California will have exclusive jurisdiction.

Notice and Takedown Procedures; Copyright Agent

If you believe any materials accessible on or from this Site infringe your copyright, you may request removal of those materials (or access thereto) from this website by contacting NeuroVia’s copyright agent (identified below) and providing the following information:

  1. Identification of the copyrighted work that you believe to be infringed. Please describe the work, and where possible include a copy or the location (e.g., URL) of an authorized version of the work.
  2. Identification of the material that you believe to be infringing and its location. Please describe the material, and provide us with its URL or any other pertinent information that will allow us to locate the material.
  3. Your name, address, telephone number and (if available) e-mail address.
  4. A statement that you have a good faith belief that the complained of use of the materials is not authorized by the copyright owner, its agent, or the law.
  5. A statement that the information that you have supplied is accurate, and indicating that “under penalty of perjury,” you are the copyright owner or are authorized to act on the copyright owner’s behalf.
  6. A signature or the electronic equivalent from the copyright holder or authorized representative.

NeuroVia’s agent for copyright issues relating to this Site is as follows:

NeuroVia, Inc.
Attention: Copyright Agent
1700 Owens Street, Suite 525
San Francisco, CA 94158
copyright@neurovia-inc.com

Changes to Terms and Conditions

We reserve the right to change these Terms and Conditions at any time and without notice. Users should review this page on a regular basis for any changes. Use of this Site following any changes constitutes a user’s acceptance of changes.

Version/Effective date

v. 1.0, effective October 26, 2017